Pre-congress Course

Pre-Congress Course, 14 september '05

Pre-Congress Course, 14 September 2005, 9.30-16.30

Best practice in endometriosis:
When support groups and physicians work together

Chairs: Andrew Prentice (UK), Axel Forman (DK), Lone Hummelshøj (DK)

There will be a choice of participating in five workshops. We would like to ask you kindly to indicate on the registration form in which workshop you would prefer to participate.

Defining what constitutes a centre/region of expertise
Self help and prevention of endometriosis
Profiling endometriosis for national and international awareness
Using support groups versus contributing to them
Identifying the barriers GPs have to consider when adolescents present with symptoms suggestive of endometriosis

Wednesday 14 September 2005
08.30– 09.25	Registration, tea and coffee
09.30 – 09.45	Introduction Lone Hummelshøj (UK) when support groups and physicians work together goals are achieved faster
09.45 – 10.00	They hear, but are they listening? Janice Beaven (UK) moving from a situation of mutual hostility and distrust between patients and health care providers towards mutual understanding and joint initiatives
10.00 – 10.30	Implementing specialised support programmes in hospitals Deborah Bush (NZ) an all encompassing view of a joint venture between the Christchurch Women’s Hospital and the NZ Endometriosis Foundation through a patient partnering programme which utilises NZEF expertise to provide seminars, information packs, management strategies, and support
10.30 – 11.00	BREAK
11.00 – 11.30	Making centres of expertise happen Axel Forman (DK) how to lobby legislators and professional organisations effectively for the implementation of national guidelines and national centres of expertise
11.30 – 12.00	Endometriosis and beyond Samantha Falconer (UK) empowering women with endometriosis through self management programmes on how to overcome symptoms and improve physician/patient interaction
12.00 – 12.30	Patients and science: essential partners in breakthrough research Mary Lou Ballweg (US) how support groups can and have driven research forward including how they have been instrumental in raising vital financing
12.30 – 13.30	LUNCH
13.30 – 15.00	Workshops: identifying global action plans through mutual interaction and involvement – a brainstorm What constitutes a centre/region of expertise? Self help and prevention of endometriosis Profiling endometriosis for national and international awareness Using support groups vs. contributing to them Identifying the barriers GPs have to consider when adolescents present with symptoms suggestive of endometriosis
15.00 – 15.30	BREAK
15.30 – 16.30	Plenary: moving from brainstorming to action Five minutes for each group to summarise 3-5 conclusions/actions Building a platform/global network for worldwide collaboration and agree on how to follow-up and implement post-congress
16.30	Adjourn

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